Here in New Mexico we are lucky to have such a wonderful resource in ARCA’s Prader-Willi Syndrome Project. They provide services and support in all areas of life for a person with PWS. The project can provide guidance in navigating an IEP, finding residential services or the right nutrition consultation, helping with emergency respite care, and so much more. I have included a blurb from their brochure, along with contact numbers below.
From the ARCA’s Prader-Willi Project brochure:
The only program of its kind in the nation, ARCA’S Prader-Willi Syndrome (PWS) Project is a statewide program offering consultation and specialized
case management for individuals with this life threatening genetic disability.
We are dedicated to promoting an increased awareness and understanding of PWS. We provide written information,training, conferences, and seminars
to individuals and groups interested in learning more about PWS.
The mission of the Prader-Willi Syndrome Project for the state of New
Mexico is to identify individuals with PWS and to assist these individuals and their families in finding services that will promote their health and allow them to choose and achieve their life goals and fully experience community life.
For more information or to refer individuals for services please contact
Shirley Stevens – PWS Project Case Coordinator
(505) 243-3817 office
(505) 550-1550 cell
Michelle Harmon – Director